IDAHO
Contact Board
http://home.swbell.net/dsny1fan/LymeDisease.html




Please make contact with others.

My Name is Ashlee and I have been sick for over 10 years with one thing or another.  I have been to numerous doctors, have so many tests I can't remember and drugs also.  NOTHING helps.  I live in a mountain community 100 miles north of Boise and am looking for someone that can help me.  I don't even know if I have LYME but I have most of the symptoms of it.  Please tell me if there are any Doctors that specialize and do the right tests to find out if that is what I Have.  I was bitten by a tick 10 years ago.........
 
 
Thank you for you reply.  I Have gone to an infectious disease doctor and he sends all of his LYME tests to Mayo Clinic.  When I told him it needed to be sent to the one in California as I had researched and they are  the only one that does the  Western Blot and the DNA test he didn't even take the print out I Had given him......................Yes, please do post my email address on your website.  I am interested in any help I can get.............
 
Thank  you,
 
ICEiamToo@aol.com


I live in Northern Idaho, Where would the nearest Lymes specialist be?  Thanks for your help.

 

Danny Cleave

Advanced Relational Technology

Technical Support Rep.

6500 N. Mineral Rd.

Coeur d' Alene, ID 83815

1-(208)-666-0158

danny@chiefarchitect.com



Hello,

My family is thinking about moving to the Lewiston, Idaho area and were
looking for a good doctor to treat chronic Lyme in a 7 and 32yr old.
Any Help would be appreciated.  Thanks very much, Ken Swann

SwnKn@aol.com
 


I got your e-mail address off a web site on Lymes disease and I was hoping you could answer a question for me.  First, a little history.

On July 4, 1987, I was camping in the mountains North of Boise, Idaho.  Unfortunately, we set up camp in an area (Dagget Falls) that was over run by tics.  We did not know this until the next day.  In the meantime, prior to moving our camp, my daughter and myself were both bitten.  However, we did not know this until a day later after we returned home and showered.  In the process of washing our hair, we each found a tic imbedded in our heads.  My daughter had been running a slight fever, so I took her to the emergency clinic and they gave her antibiotics as they were concerned with Rocky Mountain Spotted Fever.  As for me, I didn't feel any effects of my bite except for a terrible itching at the point of the bite.  (With the hair and all, I don't know if there was a rash, but it did itch like the devil)  Since I was not running any fever, the emergency clinic elected not to treat me.

About 6 weeks later, I got sick, real sick.  All the symptoms of Lymes disease.  However, I had never heard of Lymes disease at that time and when I went to the doctor about how I was feeling, apparently the doctor had never heard of it either, plus I didn't relate how I was feeling to the tic bite because several weeks had passed, and I just never made the connection.

A few months later, I was talking to someone who told me they thought I had Lymes disease (oh, by the way, the doctor I went to basically told me to lose weight and I would get better - I gained almost 100 pounds in 6 months, partly because I couldn't hardly walk, so I wasn't getting any exercise.)

Anyway, I went to a Reumatologist to see if I could possible have Lymes disease.  She didn't want to listen to me.  She said it was impossible for me to have it because there hadn't been any reported cases in the State of Idaho (now 1988) and that I should just lose weight, and I would be all right.  I suggested that maybe I was the first case, and she basically told me I didn't have a clue as to what I was talking about and the answer was NO!  She refused to even test me.

Since July 4, 1987, I have been sick.  For the first 2 years after the tic bite, I was especially sick, now I just have flares.  I have since been diagnosed with Fibromyalgia and Polycystic Ovarian Syndrome, but still feel that my main problems were brought on by the tic bite.

My question is this, is it too late to be tested for Lymes?  If not, how can I go about convincing a doctor to test me for this disease?  If I test positive, can I be treated and cured, or is this something I will have to live with?

Your help will be most appreciated.
Thank you,
pdubois@rmci.net

If you want to post my story, you're welcome to do so.  I do plan to see a
reumatologist hopfully in August for my Fibromyalgia, so hopfully I can
convince him to test me for Lymes as well.  I have to wait at least until
August as I have limited money and no insurance other than what I have
through the school I attend, and they will have to refer me in order for my
limited insurance to even pay part of the bill.  I hope to be seeing a Dr.
Lovelace in Nampa, Idaho.  I understand he is an excellent doctor and will
take the time to listen and do what ever tests you ask for.  I just want to
be able to pay for the tests.  I have been told that testing for Lymes can
be expensive.  Is this true?  Oh, yes, one more thing.  I have never heard
of anyone being cured of Lymes once they have had it for several years.  Is
this true as well?
Thanks for your help.
 

Remember, Educated People Heal Themselves!
 


A person in Idaho is looking for a support group and others with lyme disease
near Post Falls, ID  anyone know of any support groups or anyone with lyme
disease in that area contact lymedisease@juno.com and mention this board
number.

Hi,

My girlfriend and I were hiking 10 days ago, and she was bitten by a tick.  We didn't discover the
tick until the next day.  We went into a clinic to have it removed, and they did not recommend any
treatment, despite the fact we live in the Pacific NW (Oregon).

She appears to be showing several signs of Lyme disease, including the rash and stiff joints.  Do
you know of any specialists in the Portland Oregon area, or anywhere on the west coast, who can
diagnose her properly?  I appreciate any help you can provide.

Regards,
Matt Smith
mgs2@mindspring.com
 
 


I need a doctor knowledgeable about Lyme Disease in Montana or Wyoming
area. Had a round red rash spot on my arm about 8 years ago, but didn't
know
what it was at that time. I know now. Have numerous intermittant
neurological
symptoms, irregular heart beat and severe arthritis in hip, knees,
ankles which
hit me suddenly about 4 years ago. Was walking 4 miles a day and within
a
month couldn't walk anymore. I need to get on antibiotics before I end
up in
a wheel chair. The doctors I talked to in Montana say there's no Lyme in

Montana and that the ticks that cause Lyme are only in the northeast
part of
the country. It's hard to believe that they would say anything like
that. Killed
5 ticks inside my house over the years. Live in Livingston. MT.

jeb10000@yahoo.com


 

I am interested in exchanging email addresses with people in Idaho
dcook97@yahoo.com


I am 26 year old female, lol well okay on Friday I will be I am practicing up, and I have been sick for three years....I have been tested once for the Lyme's but don't believe they did a full work up.  I have talked to my doctor and doctors and I can't seem to get them to listen.  I am also lost as to who I could go to.  I have thought about going to Wyoming where there is a good doctor, Dr. Schmidt I am told.  But I am on medicaid...and I don't think they will cover me, unless I could get a referral from my doc and I don't think that is going to happen any time soon....I may even have to pay for it here... I live in Shelley, Idaho.  I have seen the lyst of symptoms at lymenet.org and I have 34 of the 38 symtoms...only one not listed is tachycardia.  But I have been an enthusiast for camping all my life...since 1 years old...at least 3-5 times a year..camping, hiking, gradening, horseback riding..you name it I was a realy out doorsy person...lol...some people even teased while I was younger that I was a real woodsy girl.  I have three daughters three and under...one set twins.....one of the twins has neurological problems..such as Dandy Walker and Hydrocephalus.  All three of my children seem to get sick very easily..could have nothing to do with it but it makes me nervous.  I have been sick for quite sometime...matter of fact I don't remember what it is like to be normal...my doctor will not test me because it is so contreversial.  But I have three children to raise and If I could get any treatment at all that will help me feel somewhat better to raise my children would be helpful.  As of right now...I am not doing much except the necessary things to take care of my kids while my husband is working...Doctor has diagnosed me with CFS...but if you know human intuition...well I have learned to trust it and I don't believe CFS is exactly what I have.  I remember being bitten when I was fourteen I have no idea how long it had been there but we removed it promtly when we found it...but from what I understand we may have done it the wrong way...smile....they used match and alchohol.  I was at girls camp at this time...I do not remember a bulls eye...but then I  didn't know what to look for and I have always had rashes growing up .....I had allergies quite commonly as a kid....could have easily saw it as a allergic reaction.......I am really frustrated with the system....I have been callled crazy, all in the head, and a hypochondriac *sorry I am not very good at spelling..use to be one of my high qualities, I even find constructing a sentence hard*......I am so sorry for the long letter...but I get a little frustrated and ramble on.....if you could help in anyway I would certainly appreciate it.....

Sincerely,

cyntha@srv.net
Shelley, Idaho

PS....I think lol...I have been through every test in the doctors book.