Midwest.html

Then there is the problem with most that we are on disability now and therefore we have Medicaid and the doctors will not accept Medicaid most of the time. This makes it to where we are constantly searching for a doctor that would just help us a little but this is not happening.

For instance I live in a Dallas Texas suburb and I stay on the phone and internet trying to find us all a pain doctor for this severe pain we have but when I tell them most of us have Medicaid in my group...it is over. I am told Medicaid does not pay enough for the amount of time it takes to treat us.

My 21 year old son died last year. My 27 year old daughter's Lyme count in her blood work is off the walls, the jail doc says. She also needs a liver transplant, kidney failure, has had a heart attack, etc. My 30 year old has Lyme, rare arachnoid brain growth, etc. My ex ( kids dad from a 25 year marriage) was on life support at Baylor in Dallas three times last year and has had 8 strokes now. My deceased son and my ex was at Baylor within a month apart last year at Baylor. I have Lyme, inoperable ruptured disk, high blood pressure, hardening of the heart wall, kidney stenosis, black lung, etc., but I have to stay going to help my family and I answer tons of e mails and calls every day from my Lyme web site I founded about 11 years ago. I am hurting so bad that I have burned my white skin black from heating pads because pain medication in Texas is getting near impossible to get. Doctors are scared to death to prescribe it even to us chronic pain patients with medical records to prove our " physical need" of pain meds. The DEA is going to make it to where we will all die in severe pain because they are targeting all decent pain docs and taking their license.

I also live in the smallest county in Texas which is Rockwall County and in Rockwall County it is against the counties man made laws to be sick, black, or poor! My two oldest kids have been in jails here for over a year and I am having to write letters to the jail at least twice weekly demanding my kids to get their meds. The jail would not even treat their huge medical problems for weeks of them being in jail. They then started giving them about half of what they was taking in the free world and they are charging money to give these to them!

I have no money any more because of the sickness. My kids are non violent offenders. My daughter had tried for years to get a doctor to help her with her high pain from Lyme and these docs all refuse to do so therefore she had a script of 30 zanax and she put a one in front of the 30 which is a felony in Texas!

Because we are standing up against this county now after they contributed to my 21 year old sons death last year by court ordering him to quit taking his high blood pressure medication that Childrens Medical Center in Dallas put him on at birth because he failed to form the vena cava to the heart causing him to near have many strokes.... this county has even tried to put many bogus cases on us all. Childrens specialist docs told me all my sons life that if he ever quit taking his blood pressure meds, he would have an enlarged heart and heart failure and the autopsy proves this is what happened to his heart.

77 times in one year at court and I have never in my 50 years of life even drank alcohol or ever done illegal drugs, or the like! This county is now trying to kill my oldest two kids. Please go to: www.geocities.com/copbrutality and read: " NEW NEWS". This web site will prove all I have said. I did sue them in Federal Court a few years ago and I won but they have continued their corruptness just the same.

In my younger years I ran two of our own businesses but never planned on being sick and when this disease crippled us, we had to give it all up and the medical expenses sucked us dry from two very profitable businesses. We now are trying to live on $560.00 a month disability! This is of course impossible and we have to live without water or electricity half the time. I think this is inhumane! When I call recourses they always tell me there is services to help us in this county but I have filled out forms repeatedly only to be turned down. Being without water and having this upchucking all the time from my loved ones is also a battle. Being without electricity last February caused a fire in my living room from my fire place! We near all died in that fire.

Hello:
Here is a message that is sent so that you receive it as a BCC with the message addressed to "Lyme Information." That way, your e-mail address is not on a long list and kept private. Please feel free to forward this message to others you know who might be interested in it.

If your e-mail address changes, please let me know so I can update my files & you can continue to get these messages.

    Larry Linford
    Lyme Disease Assn.
        of Southeastern PA
    Communications Director
    1104 Wilderness Trail
    Downingtown, PA 19335-4044
    610-269-7422
    LarryLin2000@aol.com
    Web Site: http://www.lymepa.org/
    An Affiliate of the Lyme Disease Assn. (LDA)
==============================

Kennett Friends Meeting
At 7:00 PM
Wed. February 19, 2003
Rte. 82 1/2 mile South of US 1
Kennett Square, PA

Dr. Peter Fabulian will discuss diagnosing and treating Lyme & other tick-borne diseases in his medical practice.

We welcome people who want to help us develop an active organization to support our community and those who are looking for information and support for Lyme disease or other tick-borne illnesses.

At the January 15, 2003 initial meeting, we had 32 people participate in a lively discussion. Join us in February!

Contact us by email at lymebv@comcast.net or call 610-388-7333. Directions and much more on the web site:

From: "Naoko Miyata" <tmiyata@ix.netcom.com>
To: <LymeDisease@juno.com>
Date: Sun, 21 Mar 1999 10:45:35 -0800

Hi im a student that is doing a research paper on Lyme Disease and i am
really having difficult time finding the facts about these topics. The genus
and species of the infecting organism and the Course of the disease. If you
can answer these questions it would be very helpful thankyou

answer:
check out the research links.
http://qis.net/~edwardmc/lyme.htm#look

G-2
I am still interested in exchanging email with others with Lyme Disease.
I live in Wyoming and there are no support groups, etc. I'm the only one
with Lyme in a 3 county area. No local docs are willing to take me - I
go to a specialist in Kansas City. Gets very frustrating.
Thanks
Jayne Yenko
mufcake@coffey.com

Does anyone have any information on Chembio's Rapid Lyme Test
availability?
cost?

I have been searching the internet fruitlessly for an explaination for my mothers symptoms. Please help if you can.
Her Lyme disease was diagnosed about 3 months after the bite. She was misdiagnosed in the process however. She has begun the antibiotic treatments, but with only 7 days left of the treatments she is still experiancing a good deal of pain. The pain is not the major concern though.
Yesterday she went to meet my Grandmother (her mother) at a local restaurant. Since the bite she has been becomming easily confused, so she was making a mental note to remember what she was doing at the restaurant. She told herself over and over that she was going to meet her mom. She decided she would just look for Grandmas car when she got there. Then she realized that she didn't remember what Grandmas car looked like. She tried to remember the color of the car and couldn't. She finally was able to remember that it was a blue car. (We all live in the same state and my mother sees her mother at least once a week in the same car.) She saw a blue car in the restaurant parking lot and inside of it an elderly woman with very grey hair. My mother began to panic because she thought maybe that was her mother. She wasn't sure.

She has been in her own home more than once and couldn't figure out where she was. My mother is 45 yrs old. Every one thinks she is "losing it".

Please help if you can. Some links possibly to pages that will explain the mental symptoms of the disease.
Thank you for your time.
Jaci (Illinois)

West nile virus "missouri found the virus in crows for the first time in the fall of 2001
the virus can cause encephalitis, which is an inflammation of the brain. the virus
is spread through mosquitoes after they feed on infected birds then bite people.
it is not spread by person - person contact. Virus cases occur primarily in the
late summer or early fall. Peak season is april to october"

from MOHAKCA Kansas City Metro Mosquito task force
Mid- America Regional Council
600 Broadway, suite 300
KC MO 64105-1554
816 474 4240

Midwest States
includes
Kansas, Missouri, Arkansas, Oklahoma, Texas,
Colorado, Iowa, Nebraska

Kansas City, Missouri -
has a group of four doctors that
treat lyme patients.
for info please email.

Lyme Association of Greater Kansas City, 7 to 9 p.m., except November and
December, St. Joseph's Hospital Community Center, Kansas City. Call
913-438-LYME.
will get more information.

Article 2 of 6; 1328 words
Published on 05/28/2000, Page A1 , THE KANSAS CITY STAR

KC AREA TICK RISK RISES DISEASES CARRIED BY THE INSECTS CAN
POSE SERIOUS HEALTH THREATS

Source: ALAN BAVLEY
THE KANSAS CITY STAR
A bumper crop of ticks will infest the woods and grasslands of Missouri and Kansas this spring and summer,
thanks to mild winters, abundant wildlife and rich habitats.

Please send anything that you want posted.
support groups, doctors in the area, news, personal stories,
contact info for others to reach you, web sites related to lyme or other.

I'm wondering if you include Texas in your organization as a Western state? I think I may have contacted you when I lived in New Mexico. I think you wrote back but I don't remember sending you the info you needed. Sorry, I can't remember. (We moved from Las Cruces NM to Waco TX last summer.)

Also, FYI there will be a Texas state senate hearing in Austin next week to hear testimony from lyme patients who have had problems with Drs; getting diagnosed; problems with getting sufficient treatment, etc. Dr. Burrascano will testify in the morning. It will be on March 16th I believe.