Madison is the light of my life and is the sweetest thing ever put on this earth.  She has been through alot in her little life and never ceases to amaze me with her happiness and willingness to go along with whatever us BIG people tell her we need to do.

Madison has a Mitochondrial disease and has had alot to overcome.  She has done so with such sweetness and perseverence, that she too is one of my hero's.  The first year of her life was absolute bliss, and then the doctors started telling us there was something wrong, but they weren't really sure what.  This started us down the path we are on today, and after lots of testing, lots of doctor visits, lots of therapy and lots of love, she has made wonderful gains and is still making the most of life!!  She truly is an inspiration!!

We have some answers, are still looking for others, and hope that someday we will have an answer as to why she has had to work so much harder than other kids to get to where she is today.  What we know is that she has Delayed Myelin on her brain, Fiber Type I Predominance in her muscles, global developmental delays, global hyptonia, Gastroesophygeal Reflux (GER), Nasopharyngeal Reflux (NPR), Velopharyngeal Insufficiency (VPI), Leg Length Discrepency, pronating and flat feet, diastasis recti, Sensory Integration Dysfunction, spells of lethargy, and an unusual body odor sometimes.  We aren't 100% sure where all of this is taking us, but we suspected and recently confirmed that she has a Mitochondrial Disease.
You can read more about her history here :-)

She is a little angel among us, and we hurt that she has been through so much already, and has so much more to go through yet.  She is her mommy and Daddy's Moon Beam.

~Mom~